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Those born with progeria typically live to their mid-teens or early 20s.
Even though there is a trust for Ontlametse, its coffers are running low. Advocate Bonginkosi Ngubane, one of the founders of the trust, said they are doing their best to meet Ontlametse’s needs.
The challenges are dangerous and sinister, with users encouraged to kill themselves on the 50th and final day.